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Useful Links

• Alpha Europe Foundation  
 Organisation and sponsorship of Alpha1 events in Europe
www.alpha1-europe.eu
• Eurordis  
 European Organisation for Rare
     Diseases
www.eurordis.org
• EPPOSI
 
 European Platform for Patients’
    Organisations, Science and 
    Industry
www.epposi.org
• PPTA 
 Plasma Protein Therapeutics
      Association
www.pptaglobal.org
• Orphanet 
 The portal for rare diseases and
     orphan drugs
www.orpha.net
• EMA
 European Medicines Agency
www.emea.europa.eu
• EC commission 
  DG Sanco 
http://ec.europa.eu/dgs

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Alfa Europe Federation PDF Print E-mail

Alfa Europe Federation's aim is to provide a European information and resources network for patient support groups and linked associations, health professionals , institutions and industry who wish to improve and extend their knowledge of Alpha1 Antitrypsin Deficiency.

We aim to use and create services and tools in order to share this knowledge and those skills available to provide a much improved understanding of the condition, health care, social and psychological support for patients and families affected.

 
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