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Useful Links

• Alpha Europe Foundation  
 Organisation and sponsorship of Alpha1 events in Europe
www.alpha1-europe.eu
• Eurordis  
 European Organisation for Rare
     Diseases
www.eurordis.org
• EPPOSI
 
 European Platform for Patients’
    Organisations, Science and 
    Industry
www.epposi.org
• PPTA 
 Plasma Protein Therapeutics
      Association
www.pptaglobal.org
• Orphanet 
 The portal for rare diseases and
     orphan drugs
www.orpha.net
• EMA
 European Medicines Agency
www.emea.europa.eu
• EC commission 
  DG Sanco 
http://ec.europa.eu/dgs

Home arrow Donate / Support

Donate / Support PDF Print E-mail

The Alfa Europe Federation is a non-profit organisation which aims to support patients suffering from Alfa-1-antitrypsin deficiency. Through developing a network of patient support groups across Europe, we can help to share knowledge, resources and best-practices.

We also aim to support and develop communication on AAT deficiency through a network of health professionals, who specialise in treatment and care for AAT Deficiency, and who can share this knowledge to newcomers, and thereby improve the understanding of this condition.

We encourage an open-communication policy and aim to develop projects in line with these objectives.

Your support is necessary through:

  • joining our movement as a patient start -up group or health professional interested in learning or sharing knowledge with other specialists 
  • continual voluntary support or participating in specific events
  • identifying financial support to achieve specific projects or the support of medium- long term objectives
  • sharing your knowledge of AAT deficiency with other participants


 Please contact with your comments and suggestions. Join in our blog to exchange ideas.

 

 
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