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Useful Links

• Alpha Europe Foundation  
 Organisation and sponsorship of Alpha1 events in Europe
www.alpha1-europe.eu
• Eurordis  
 European Organisation for Rare
     Diseases
www.eurordis.org
• EPPOSI
 
 European Platform for Patients’
    Organisations, Science and 
    Industry
www.epposi.org
• PPTA 
 Plasma Protein Therapeutics
      Association
www.pptaglobal.org
• Orphanet 
 The portal for rare diseases and
     orphan drugs
www.orpha.net
• EMA
 European Medicines Agency
www.emea.europa.eu
• EC commission 
  DG Sanco 
http://ec.europa.eu/dgs

Home arrow Projects

Projects PDF Print E-mail


As members of the AlfaEurope Federation, we need your input to design

  • fundraising campaigns
  • awareness campaigns
Current Awareness campaigns:
  • Letter-writing campaign to each country's local MP to create awareness of Alfa-1 in their municipality.
  • European Alfa Awareness to celebrate Chopin's birthfay on the 7 October. Ireland successfully organised a commemorative concert in October 2009,for this special date.Chopin_programme.
  • visibility projects: Information Days are being held by different countries: English and  a German- Danish joint event in May 2009
  • European film project to raise awareness for COPD and find the alphas within that community.Film Project COPD and AAT defiency

Chopin was a very European figure, and through Dr D Lomas, Cambridge, scientific research, it would seem very probable that he suffered from AAT deficiency, unknown in that period.

We need you to work on fundraising objectives to ensure that the Alfa Europe Federation creates an ethical and transparent support structure from a diverse source of private and public sector sponsors.

We also need an independent observer to monitor our efforts. Please volunteer your services to the AlfaEurope team.

 
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