Alfa Europe

Federation
• Members - Website Links • Members - Public Contact Details • Publications/Information • About Us

Downloads
• Public Documents

Useful Links

• Alpha Europe Foundation
Organisation and sponsorship of Alpha1 events in Europe
www.alpha1-europe.eu
• Eurordis
European Organisation for Rare
     Diseases
www.eurordis.org
• EPPOSI
European Platform for Patients’
    Organisations, Science and
    Industry
www.epposi.org
• PPTA
Plasma Protein Therapeutics
      Association
www.pptaglobal.org
• Orphanet
The portal for rare diseases and
    orphan drugs
www.orpha.net
• EMA
European Medicines Agency
www.emea.europa.eu
• EC commission
DG Sanco
http://ec.europa.eu/dgs

Agenda / News
EU League for Rare Diseases National League of Action for Patients with Rare Diseases EU New Director General DG SANCO has a new leader EU ECH EU health system organisations Gene Therapy Trial - working towards a possible cure EPPOSI 10th Workshop on Partnering for Rare Diseases Therapy Development