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Useful Links

• Alpha Europe Foundation  
 Organisation and sponsorship of Alpha1 events in Europe
www.alpha1-europe.eu
• Eurordis  
 European Organisation for Rare
     Diseases
www.eurordis.org
• EPPOSI
 
 European Platform for Patients’
    Organisations, Science and 
    Industry
www.epposi.org
• PPTA 
 Plasma Protein Therapeutics
      Association
www.pptaglobal.org
• Orphanet 
 The portal for rare diseases and
     orphan drugs
www.orpha.net
• EMA
 European Medicines Agency
www.emea.europa.eu
• EC commission 
  DG Sanco 
http://ec.europa.eu/dgs

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About Us PDF Print E-mail

Our Statutes

Downloadable document:  Alpha Statutes March07

Membership details:

Membership of Alfa Europe Federation is open to Alpha 1 patient organisations in any European country which is not already represented within the Federation.  A European country is taken to be a state that is a member of the European Economic Community or the European Free Trade Agreement.

Individuals, Alphas or carers, who live in a European country which does not have an Alpha patient organisation as a member of the Federation and who have the intention to form such an organisation may join the Federation as non-voting members.

For more information, registration papers etc. Please contact:

Treasurer: Juergen Schulz
Alfa Europe Federation
Lavendelweg 10
D-45770 Marl
Germany

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