Alfa Europe - Web Links

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• Members - Website Links • Members - Public Contact Details • Publications/Information • About Us

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• Public Documents

Useful Links

• Alpha Europe Foundation
Organisation and sponsorship of Alpha1 events in Europe
www.alpha1-europe.eu
• Eurordis
European Organisation for Rare
     Diseases
www.eurordis.org
• EPPOSI
European Platform for Patients’
    Organisations, Science and
    Industry
www.epposi.org
• PPTA
Plasma Protein Therapeutics
      Association
www.pptaglobal.org
• Orphanet
The portal for rare diseases and
    orphan drugs
www.orpha.net
• EMA
European Medicines Agency
www.emea.europa.eu
• EC commission
DG Sanco
http://ec.europa.eu/dgs

Home

Links

	Web Link	Hits
	Alpha One Foundation Alpha One Foundation was established in 2001 to promote research into Alpha 1, to improve diagnosis, treatment and to improve life expectancy and lifestyle of people with this condition.	169
	Alpha-1 Research Alpha-1 Antitrypsin Deficiency Worldwide Research Network	215
	Orphanet The portal for rare diseases and orphan drugs	165
	PPTA The Plasma Protein Therapeutics Association (PPTA)	185

Links (4)

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Agenda / News
EU League for Rare Diseases National League of Action for Patients with Rare Diseases EU New Director General DG SANCO has a new leader EU ECH EU health system organisations Gene Therapy Trial - working towards a possible cure EPPOSI 10th Workshop on Partnering for Rare Diseases Therapy Development