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• Alpha Europe Foundation
Organisation and sponsorship of Alpha1 events in Europe
www.alpha1-europe.eu
• Eurordis
European Organisation for Rare
Diseases
www.eurordis.org
• EPPOSI
European Platform for Patients’
Organisations, Science and
Industry
www.epposi.org
• PPTA
Plasma Protein Therapeutics
Association
www.pptaglobal.org
• Orphanet
The portal for rare diseases and
orphan drugs
www.orpha.net
• EMA
European Medicines Agency
www.emea.europa.eu
• EC commission
DG Sanco
http://ec.europa.eu/dgs
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