Alfa Europe

Federation
• Members - Website Links • Members - Public Contact Details • Publications/Information • About Us

Downloads
• Public Documents

Useful Links

• Alpha Europe Foundation
Organisation and sponsorship of Alpha1 events in Europe
www.alpha1-europe.eu
• Eurordis
European Organisation for Rare
     Diseases
www.eurordis.org
• EPPOSI
European Platform for Patients’
    Organisations, Science and
    Industry
www.epposi.org
• PPTA
Plasma Protein Therapeutics
      Association
www.pptaglobal.org
• Orphanet
The portal for rare diseases and
    orphan drugs
www.orpha.net
• EMA
European Medicines Agency
www.emea.europa.eu
• EC commission
DG Sanco
http://ec.europa.eu/dgs

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Alfa Europe Federation

Alfa Europe Federation's aim is to provide a European information and resources network for patient support groups and linked associations, health professionals , institutions and industry who wish to improve and extend their knowledge of Alpha1 Antitrypsin Deficiency.

We aim to use and create services and tools in order to share this knowledge and those skills available to provide a much improved understanding of the condition, health care, social and psychological support for patients and families affected.

National Members

The federation is composed of thirteen national associations.

(To visit a member's website Click on the national flag.)

	Country		Name of the member association
	Austria		Alpha 1 - Österreich
	Czech Republic		Alfa 1 Česká republika
	Denmark		Alfa-1 Danmark
	France		ADAAT Alpha-1 France
	Germany		Alpha1 Deutschland
	Ireland		Alpha 1 Foundation
	Italy		Associazione Nazionale Alfa1-AT
	Netherlands		Alpha-1 Netherland
	Norway		Alfa-1-foreningen i Norge
	Portugal		Associação Alfa 1 de Portugal
	Spain		Asociación Alfa-1 de España
	Sweden		Alfa 1 Sverige
	United Kingdom		Alpha 1 Awareness UK

What is Alpha-1 antitrypsin deficiency?

It's a disease caused by a genetic abnormality where only low or null levels of the protein alfa-1-antitrypsin are present in the blood
It can cause lung disease in adults and some children
It can in fewer cases cause liver disease in children, infants or adults
It is underdiagnosed in all countries
Although there is no present cure, it is treatable
It can be easily identified by a simple blood test